Health Care Transition for Adolescents and Young Adults With Pediatric-Onset Liver Disease and Transplantation

Publication Date: January 13, 2023
Last Updated: January 31, 2023

BARRIERS TO TRANSITION OF CARE

  • Barriers to transition are multifaceted and include individual, family, and system-wide factors.
  • Transition planning should be initiated by the pediatric team in early adolescence.
  • Pediatric hepatology and transplant recipients should have access to a mental health specialist with expertise in adolescents with chronic illness.
  • Barriers to HCT are best overcome by a multidisciplinary, standardized approach to transition planning with an emphasis on partnership and collaborative practice between pediatric and adult providers.

RECOMMENDED APPROACH TO TRANSITION OF CARE

  • A structured transition program is associated with improved health outcomes, patient experience, and utilization of health care.
  • The Six Core Elements of Health Care Transition™ are applicable to AYA with CLD as well as LT recipients and should be utilized to establish a HCT program.
  • An adaptation of the Six Core Elements pertaining to AYA with pediatric-onset liver disease and transplantation is summarized in Table 2.
  • Regular assessment of transition readiness utilizing TRA tools is an essential component of transition planning.

Overview

Title

Health Care Transition for Adolescents and Young Adults With Pediatric-Onset Liver Disease and Transplantation

Authoring Organization